Event Coverage Can we dig deep for a little girl? Scarlett Fever 3

I know it's hard times for everyone these days and we're all making do, but if you want something to give you that good feeling in your heart, read on.

I have had the pleasure of meeting this little girl and her parents, and you won't find a better cause. Please help out any way you can.


SCARLETT FEVER 3 ANNOUNCEMENT !
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[FONT=Verdana, Arial, Helvetica, sans-serif]The ROAD LORDS C.C. & GAMBINO KUSTOMS are putting together a benefit for a beautiful 15 year old girl with Rett Syndrome.
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[FONT=Verdana, Arial, Helvetica, sans-serif]Scarlett and Mom Rosa[/FONT]​

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[FONT=Verdana, Arial, Helvetica, sans-serif]She is the daughter of Bob & Rosa James and the cost of her care is overwhelming! Everyone falls in love the minute they meet her and you will too!

The benefit will be at the DNA LOUNGE in San Francisco on March 8th, 2009. We are in the process of booking some killer bands so stay tuned for updates.[/FONT]
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[/FONT]We will also have a raffle, and silent auction.
We need your help and contributions to help this very worthy cause! There are Car Clubs and Motorcycle Clubs joining us in supporting her, as well as regular working cl*** people (like us) Flyers and more info as it comes in...
We will have both a raffle and a silent auction with BANGIN' prizes, including motorcycle parts, hot rod parts and accessories, tattoo time, t-shirts, art, and rock memorabilia from some of our FAVORITE rockstars!!!

Please contact us via e-mail to contribute to the benefit.
We are colecting donations of gifts for the auction and raffle, as well as
cash to buy things we need for the benefit party and for her
special medical needs fund.


Scarlett has a myspace page where you can see pictures of her and read more about her. It is moderated by her parents.
www.myspace.com/missscarlett13

She also has a Paypal account for cash donations to her special medical needs fund.
Just go to www.paypal.com , and donate to Scarlettsspecialneedsfund@yahoo.com



[FONT=Verdana, Arial, Helvetica, sans-serif]What is Rett syndrome?
Rett syndrome is a childhood neurodevelopmental disorder characterized by normal early development followed by loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, gait abnormalities, seizures, and mental retardation. It affects females almost exclusively.

The course of Rett syndrome, including the age of onset and the severity of symptoms, varies from child to child. Before the symptoms begin, however, the child appears to grow and develop normally. Then, gradually, mental and physical symptoms appear. Hypotonia (loss of muscle tone) is usually the first symptom. As the syndrome progresses, the child loses purposeful use of her hands and the ability to speak. Other early symptoms may include problems crawling or walking and diminished eye contact. The loss of functional use of the hands is followed by compulsive hand movements such as wringing and washing. The onset of this period of regression is sometimes sudden.

Another symptom, apraxia — the inability to perform motor functions — is perhaps the most severely disabling feature of Rett syndrome, interfering with every body movement, including eye gaze and speech.

Individuals with Rett syndrome often exhibit autistic-like behaviors in the early stages. Other symptoms may include toe walking; sleep problems; wide-based gait; teeth grinding and difficulty chewing; slowed growth; seizures; cognitive disabilities; and breathing difficulties while awake such as hyperventilation, apnea (breath holding), and air swallowing.

The following website will give you more information about Rett Syndrome: http://www.ninds.nih.gov/disorders/rett/detail_rett.htm
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Just send what little money was left in my Paypal account.

 

Thanks Gator, much appreciated.

 

Paypal sent. Always glad to help. Hope the event goes well.

 

I'll talk to some business owners I know for raffle prizes (you guys may have already talked to them though). I'll talk to the guys who come to Asylum to raise some cash as well. Hopefully some of us will make the benefit too.

 

Just sent you a PM... I'll send some stuff for the raffle.

 

Awsome guys!!! We all thank you.

 

205 looks and only 6 responses? Come on guys and gals, even just alittle something will make YOU feel a whole lot better.

Something for the raffle?

 

Paypal on the way. If every H.A.M.B er sent $5, that would be $325,000. Help out.

 

PayPal sent

 

Wow, wouldn't that be something? Thanks Richard for the PayPal.

Thanks Toymaker.


I know everyones budgets are tight but it doesn't have to be just money. How about something for the raffle or silent auction?

 

Paypal sent!

 

Awsome, thanks for caring and sending something.

 

Money sent, more than happy to help out.

*****

 

Now we're talking, let's keep this train rolling.

Thanks *****!!!

 

here is the show poster
show info here http://scarlettfever3.com/

 

Paypal sent!

James

 

Thanks guys, this is great.

 

Just did the same!

Come on people, Kick down!!!

 

yeah, that's what I say. I guess after the GNRS is over I'll have to sic Alex Gambino after all of you.

 

PM sent about some VooDoo Dolls "stuff". . .

 

Thanks Frankie, I'm sure VooDoo Dolls stuff will fetch a good price at auction. I'd wear one!

 

What is the date you have to have items by and do I send it to the same address as last year?

 

Sent you a PM for address

 

Paypal sent.

 

I went to the link on cash donations and it is diabled. can you post a mailing address and I will send a donation. Thanks TP

 

Bruce send me the event facts so I can post them, like we do for Midnight Madness show.

 

It must have just gone down. i'll try and find out why and get back to everyone.

Thanks for your donation Kustomkarma, you must have gotten in before it went down,

 

Lea,

Thanks so much for doing that. What a great site and a great bunch of people.

 

btt