Brain tumor update......... could've gone better

prayers sent...

 

Sorry to hear this.

Just for your info there is a neurosurgeon in Australia that does some amazing work. He's a bit of a folk hero and the other surgeons hate him. He has operated successfully on tumors that other surgeons have deemed inoperable. Saved a lot of lives.

If you are interested Google him. His name is Charlie Teo. If you have no luck with that, PM me and I'll chase it up from here.

All the best

Pete

 

A friend of mine had the same thing 10 years ago. He listened to the docs, kept good thoughts, had lots of support and he's disease free and more active today than ever. All the best from Southern California...

 

keep your chin up and fight like hell. prayers sent.

 

i hope its a one time thing for you man. and i hope they find what ever caused it and ill keep you in my prayers. i hope you get better man
-kujo

 

Stay up.

Cris

 

Keep your spirits up knowing people you've never met are praying for you.


Billy

 

Sounds like your attitude is right on. Treatment these days is pretty amazing, though chemo and radiation will be really tough. You have a strong support network here on the HAMB. Wishing you the best....and keep us updated.

 

Positive thoughts and prayers coming from central CT. Hang in there man!

Al in CT

 

John enjoyed meeting you at St. Gregory show. My prayers are with you. Bill

 

Hang in there; our thoughts and prayers will be with you.

 

Good luck and stay positive !! My wife is an Oncology nurse, if you have any questions on the treatments you going for or want a second opinion on info that is given to you feel free to ask. I'll pass the question along.

 

i wish you the best man..theres nothing the brain needs more of is oxygen..you may want to check into ''hyperbaric chamber therapy''..i read great things about it..good luck

 

I'll keep you and your family in my prayers and stay strong. This can and will be beat.

 

I'll be praying for you.

 

You've made it this far with that positive attitude - don't get down now ...... keep you chin up. The hard parts over - they removed it before it was to big to remove.

I'll say a few HM's for you.......

Paco

 

Good luck man....Prayers are on the way! Keep that possitive attitude and you will beat the wheels off it!

 

Just a note on tumor grading....

When a biopsy is done it's a very small sample. A tumor can be grade IV in one area and grade II in another. It's like looking at an area the size of a dime on a tire and from that sample deciding if all of the tread is good.

My wife is a 4 year survivor of a grade III Oligodendrogiloma tumor resection in the left Temporal lobe that was only 50% removed because of location. After surgery she went for "Cyber-knife" radiation treatments 5 days a week for 6 weeks. The radiation didn't make her sick and the actual treatments are only about 10-15 minutes per session.

As a bonus her radiation treatment center had a ROCKIN' stereo, so I'd burn some MP3's to disc then donate the disc every day. After the 2nd day the staff would meet us at the door wondering what music we had that day.

Her seizures have gone from having Grand Mals 3-4 times a week before treatment to having a small "focal seizure" about once every 3-4 months after treatment. She used to have terrible headaches nearly every day and those are nearly gone. Her quality of life was greatly improved.

During tough times humor and a good attitude are your best friends and will help you kick the tumor's ass.

All the best to you and if you need support or have questions, PM me. I've done tons of research.

 

Courage is rightly esteemed the first of human qualities... because it is the quality which guarantees all others.
Winston Churchill

Stay brave, our prayers are with you.
Chris and Penny (AKA Skullz)

 

Thoughts and prayers from a hack of a hotrodder.

s.

 

John I can't add much more to what already has been said other then you're in our thoughts & prayers & we're hoping the best for you...joe

 

Mind over matter...Be Positive.

 

I came in to work today feeling kinda, well you know, kinda blah. Reading this thread definetly got me in the right spirits again! First real cold morning where I wear a jacket to work, slight cold/flu for last few days and the stress of the unknown tumor stuff can add up to a rough morning pretty quick!

Thanks for helping me out with this stuff! I put in a call to the Oncologist this morning, they're reviewing my case and will call to schedule an appt. Feels good to have the forward momentum going, ya know?

 

Positive thoughts and prayer will keep ya going strong...we are all pulling for you and hopefully soon this will be a bump in the road in your rear view mirror...

 

Glad to hear you're feeling better in yourself.

Nick.

 

john, isn't this great all these people that are strangers sending out prayers,that has to be the coolest thing anyone can get. i'm a 16 year survivor of cancer so if you have to keep reading this thread over and over when your feeling bad as it will surely lift your spirits.

 

There are alot of good humans on this board.John,think positive and dont look back there is a prayer going your way allong with one for curley.God speed boys,its only a speed bump.

 

I hope to meet you some day but until then you have my prayers.

 

Best wishes, prayers, and all my mojo sent in your direction!
Keep up the good fight... You can beat this thing!

 

All the best thoughts for a great resolution..stay tough..people need you..!